Quality of life of caregivers of patients with progres­sive neurological dis­ease

Authors: R. Kozáková;  R. Bužgová
Authors‘ workplace: Ústav ošetřovatelství a porodní asistence, LF OU, Ostrava
Published in: Cesk Slov Neurol N 2018; 81(6): 653-657
Category: Review Article
doi: 10.14735/amcsnn2018653


Progres­sive neurological dis­eases have a profound impact on the quality of life of patients and their family caregivers. Abroad, question­naires and scales are used to evaluate caregivers’ quality of life and to provide fol­low-up support and individualized care. The aim of this review article is to describe and analyze the scales used in as­ses­s­­ing the quality of life of caregivers of patients with progres­sive neurological dis­eases. By search­­ing in electronic databases, 11 specific scales designed to as­sess caregivers’ quality of life were found – out of which 6 specific tools for caregivers of patients with dementia, 2 tools for caregivers of patients with Huntington’s dis­ease, 1 scale for caregivers of patients with multiple sclerosis, and 2 scales for caregivers of patients with Parkinson’s dis­ease. These scales are recom­mended to be used in both clinical practice and research.

Key words:

quality of life – caregiver – progressive neurological diseases

The authors declare they have no potential conflicts of interest concerning drugs, products, or services used in the study.

The Editorial Board declares that the manu­script met the ICMJE “uniform requirements” for biomedical papers.


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